The Race for a Cure is On—But Not Every Kid Is At The Starting Line

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Cassie + Friends fundraising run © Courtesy of Cassie + Friends

By David Porte, Founder, Cassie + Friends Society

When my daughter was diagnosed with Juvenile Idiopathic Arthritis (JIA), an incurable autoimmune disease, at just 22 months, I didn’t know where to turn. So I started running. I entered a charity race to raise money for a cure, and to try and outrun the fear of what her future might hold.

At the time, I didn’t even know kids could get arthritis. Fast forward 18 years, and we’ve come a long way, but heartbreakingly, most people still don’t know. A recent Ipsos poll shows that only one in five Canadians are aware that arthritis can affect children.

But Juvenile Arthritis is real. It’s painful. It can cause blindness, disability, and lifelong mental health challenges. And for Cassie and 25,000 other kids growing up with this disease in Canada, especially those from underserved and remote communities, the stakes couldn’t be higher.

That first run marked the beginning of Cassie + Friends—Canada’s only charity 100 per cent dedicated to supporting children and families affected by Juvenile Arthritis and other childhood rheumatic diseases, now with 14 run/walk events across Canada. What started as a group of parents has grown into a national movement connecting thousands of families each year to education, mentorship, support and cutting-edge research.

And now, for the first time, the race toward a cure is picking up speed.

Innovative treatments. Big data. Personalized medicine. And world-leading researchers based right here in Canada are breaking new ground and moving faster than ever toward better outcomes and, one day, a cure.

But there’s a gap—a dangerous one.

Not all families know what symptoms to watch for. Not every child sees a specialist in time, or at all. Not every treatment reaches the kids who need it most. Without support, without awareness, without equity, too many kids are being left behind.

That’s why Cassie + Friends is here. We’re not just cheering from the sidelines but building the track. We’re ensuring families are seen and supported from Day One. We’re bringing the voices and needs of patients and parents into the lab. We’re funding the tools and partnerships that turn scientific progress into real-world impact.

juvenile idiopathic arthritis
David and Cassie © Courtesy of Cassie + Friends

And we need your help to go further. Cassie, now in her second year of university, continues to face difficult days with her arthritis. Her resilience inspires me, but so does the knowledge that so many other kids are still waiting for answers, care, and a cure.

This June, I’ll once again lace up my shoes for the Vancouver Half Marathon & 5 km Charity Challenge. I’ll be joined by over 150 families, healthcare, and corporate champions like Nicola Wealth, Westland Insurance and Trillium Projects—all running to raise awareness and support for kids who are too often invisible in the healthcare system.

The race of innovation is well underway. But unless we make sure every child has a chance to get to the starting line and the support to cross the finish line, we won’t have won.

So please: run with us. Donate. Share our story. Help us spread the word that #KidsCantWait.

Join our team at cassieandfriends.ca/run

Donate at cassieandfriends.ca/donate

Learn more at cassieandfriends.ca/kidscantwait

If you believe kids deserve to grow up pain-free, active, and confident in their future, join Team Cassie + Friends. Let’s finish this race together.

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We’re on a mission to transform the lives of kids and families living with juvenile arthritis and other rheumatic diseases through research, education, connection and support.

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