A summer event at the park in June 2025 — we officially started our one year of celebrations for our 65th anniversary © Courtesy of Edmonton Epilepsy Association
Stories of individuals, families, and entire communities whose lives have been shaped—sometimes suddenly, sometimes quietly—by epilepsy. Each diagnosis marks a moment when life shifts: a parent holding their breath as their child seizes for the first time; a teenager masking fear with determination and sometimes isolation; an adult searching for confidence after the world changes without warning—driving and working no longer an option. A senior who gets confused and dismissed because of an incorrect diagnosis. These moments carry weight. And these are the “stories we carry” with us, in our community. They remind us why our work matters.
Community Support When Life Changes
The challenges faced by people with epilepsy are deeply personal and often invisible to others. Seizures don’t just interrupt routines; they can stir anxiety, sadness, or a quiet sense of loss that only those closest truly witness. Yet even in the hardest moments, community can be a powerful force. While government support and, of course, medical interventions have their place, many families cannot face the new life realities with epilepsy alone. That is where we come in! Our community of staff, volunteers, board of directors, and supporters bring the compassion, patience, and generosity needed to truly make a difference in these people’s lives!
Our grassroots foundation has always been our strength. Since 1960, our charity’s spirit shines in our programs—from our epilepsy book series to Kids on the Block, a puppet show that teaches elementary school students about empathy and inclusiveness through storytelling that feels accessible and fun. Sixty-five years later, we’re still here—without core operational funding and with a small but mighty staff. What has carried us through is the determination of volunteers, doctors, caregivers, and individuals living with epilepsy. Their commitment has built an organization that is vibrant, compassionate, and adaptable, one that evolves with the needs of the community, while staying true to its original mission.
We won’t pretend the road has been easy. Uncertainty about future fundraisers or sponsors is a constant part of our reality. There are days when continuing the work feels heavy. But we move forward because we are anchored by the values that guide every conversation and every decision: empowerment, respect, compassion, dedication, and integrity. These principles are the reason people trust us—and the reason we endure.
The Edmonton Epilepsy Association may be the little charity you’ve never heard of. But chances are, you know someone with epilepsy: a colleague, a friend, a classmate, a family member. And whether they’ve needed support or not, our work has always been for them—and for you.
You may never need us. We hope you never do. But if one day life changes—if fear creeps in, if questions feel overwhelming, if you simply need someone who understands—we’ll be here. Ready to listen.
How Can We Help?
Reach out. Call our team. Talk to our volunteers. Ask your questions—big or small. If we don’t have the answer, we’ll find it. That’s the power of connection.
How Can You Help?
Connect with us. Call 780-488-9600, email info@edmontonepilepsy.org, visit edmontonepilepsy.org, or follow us on social media. Every act of support strengthens the next 65 years of direct, essential, and heartfelt service to those living with epilepsy.
Together, we turn shadows into light—one story at a time.
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The Edmonton Epilepsy Association has been providing services for its members since 1960 in the Edmonton and northern Alberta region.